Why We Do This
Tony Villiotti received a liver transplant in March 2018 at Allegheny General Hospital in Pittsburgh. That was the culmination of a twelve year journey through the quagmire that is Non-Alcoholic Fatty Liver Disease (NAFLD) and Non-Alcoholic Steatohepatitis (NASH).
- 2005 – Tony was first told he had a fatty liver; didn’t seem serious as it was casually mentioned by doctor and no information was provided aside from the advice to lose weight, eat healthier and exercise
- 2005-2014 – Tony’s fatty liver was casually mentioned from time-to-time at doctors appointments but never seemed serious
- 2014 – Tony was told he had NASH and cirrhosis; a shocking diagnosis as he never heard of NASH and rarely, if ever, drank alcohol.
- 2017 – Tony learned the cirrhosis led to liver cancer; spot radiation used to treat cancer; Tony was put on transplant list
- 2017-2018 – Tony experienced a multitude of health issues and a few hospital stays; most serious was hepatic encephalopathy (HE) which caused temporary brain damage
- 2018 – Tony received his liver transplant on March 18
While recovering and reflecting, Tony and his wife and caregiver Betsy, concluded that this arduous journey could have been avoided with the proper education and information. They never knew that fatty liver could ultimately lead Tony down this potentially fatal path or that making lifestyle changes, particularly with diet and exercise, could have likely reversed the damage and prevented the whole nightmare. They were also shocked to learn that cirrhosis is not only a drinker’s disease.
Unfortunately, this is typical of most people. Far too many people have never heard of NAFLD or NASH. Tony and Betsy believe they could have reversed Tony’s liver damage with the proper guidance and information. Tony was fortunate to get a transplant and they felt he was given this gift of life so he could educate others and help them prevent a similar fate. That led them to form NASH EDUCATION, a 501(c)(3) corporation. NASH EDUCATION now does business as NASH kNOWledge in order to avoid confusion with an excellent organization with a similar name.
View 501(c)(3) Letter